An interesting article from LUMC highlights Prof. Onno Teng, recently appointed European coordinator for rare autoimmune diseases within ERN RITA and Stream Lead for AI‑Vasc.
In the article, Prof. Teng shares his vision for transforming care for people with rare autoimmune diseases. He explains the challenges patients face in navigating the healthcare system, likening it to waiting for a crowded train, and stresses the need for faster recognition, better collaboration, and truly patient-centered care.
Prof. Teng also showcases innovative approaches, including the LuVaCs app for ANCA-associated vasculitis, which integrates patient-reported data with medical records to create tailored, digital care pathways. His insights underline how expertise should travel, rather than patients, and highlight the critical role of networks like ERN RITA in connecting clinicians, researchers, and patients across Europe.
Read the full article: On the right track for rare diseases – LUMC
