Save the Date and Register!

The 2nd edition of the Good Practice Sharing Initiative will be held online on 30 May 2024 from 15:00 to 17:00 CET. It is organised by the ERN ReCONNET Working Group Research and Quality of Care led by Dr. Rosaria Talarico, Scientific Coordinator, and ePAG Ilaria Galetti.

The following topics will be discussed:

  • Introduction from the Chairs of the ERN ReCONNET Research and Quality of Care Working GroupR. Talarico, I. Galetti.
  • Nurse clinics organisation for wound care and pregnancy management. S. Gori, V. Venturini, M. Mosca, R. Talarico (AOU Pisa).
  • The ERN ReCONNET Relapsing Polychondritis (RP) Quality of Life (RP-QoL) assessment tool. L. Arnaud (Hôpitaux Universitaires de Strasbourg).
  • ScleroNet: A regional Systemic Sclerosis (SSc) management network. P. Canziani (Presidente GILS), C. Bellocchi (Foundation IRCCS Ca’ Granda Ospedale Maggiore Polyclinic – Milan), C. Campochiaro (IRCCS San Raffaele – Milan).
  • The institutional “response” to the ERN system, the Padua Model. G. Perilongo (AOU Padua).
  • Practical guidelines for the diagnosis and management of the Non-vascular Ehlers-Danlos Syndromes (EDS). G. Guichou (Hôpital Raymond Poincaré).

Registrations are open here.