We are happy to inform you that the MERITA project “A metadata registry for the ERN RITA” has started!
The aim is to complete the registration of all the RITA registries in the European Rare Diseases Registry Infrastructure and develop a new RITA registry collecting basic data from all the RITA network registries, according the Common Data Elements identified by the European Commission’s Joint Research Centre.
This is an important step towards attaining interoperability between rare immune disorder registries, which is essential to ameliorate care of patients.
You can download the PDF version of the project leaflet here.