We are delighted to announce the publication of a new research paper written by members of ERN RITA, including the Transition Working Group, chaired by Siobhan Burns during the past years.
The paper addresses the critical need for optimising the transition of young patients with Primary Immunodeficiency Diseases (PID) and Autoinflammatory Disorders (AID) to adult services. Using the Delphi method, the study establishes expert consensus recommendations for effective transitional care.
Key highlights include guidelines on programme structure, collaboration with social systems, and safe care transfer. These recommendations aim to standardise and improve health outcomes for patients across Europe.
This publication underscores ERN RITA’s commitment to advancing care for rare diseases.
📖 Read the full publication here.
