Introductory text
Categories:
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- Announcements
- Events / Invitations
- Publications
Topics:
- PID
- AID
- AI
- PR
- Registries
- COVID-19
- HPO
Save the date:
- Consensus meeting: International Clinical trial with Interferon Inhibitors in JDM
- Pre-congress course on Adult Haemophagocytic Lymphohistiocytosis
- Immune dysregulation workshop by the SJD Barcelona Children’s Hospital
- Early bird registration is open for IPIC2023!
- How I Diagnose Autoimmune Encephalitis?
- EPNS Congress 2023, Prague
- How I perform a Genetic PID diagnosis: exome or go for gene panel first?
- Course on Primary Immunodeficiencies for Clinicians and Nurses
- Symposium on Primary Immunodeficiencies 2023
- ERN RITA General Assembly, 16-17 June in Utrecht, Netherlands
- How do I diagnose interstitial lung disease in different immune-mediated disorders?
- 20th annual Spring School of Primary Immunodeficiencies
- Tuesday lunch with RITA: How do I treat ANCA-Associated Vasculitis?
- Save the Date! AIDA International Seminars 2023
- Save the Date! Next International Primary Immunodeficiencies Congress #IPIC2023
- EJP RD – ERN Workshop: RARE TOGETHER
- Save the Date! 13th C1-inhibitor Deficiency & Angioedema Workshop!
- Register to the Training on Strategies to foster solutions of undiagnosed rare disease cases
- Save the Date – Midterm Meeting on New indications in Immunedysregulatory, Autoinflammatory and Autoimmune Diseases
- Save the Date – Klaus Betke Symposium 2023
- Tuesday lunch with RITA: Rare disorders in the borderline between PID and autoimmunity
- Tuesday lunch with RITA: Vaccination of immunodeficient patients and their social network
- Tuesday lunch with RITA: Cytokine Storm Syndromes
- Tuesday Lunch with RITA: Tatoo and Immune mediated diseases
- Tuesday Lunch with RITA: Two years of SCID newborn screening in Germany – What have we learned?
- PReS 2022: Hybrid Congress
- From Paradigms to Paradoxes in Immunity and Immunopathology (PPII)
- ESID-IPOPI-INGID Biennial meeting: Dysregulation and hyperinflammation in inborn errors of immunity (IEI)
- From high throughput sequencing to diagnosis in immune mediated disorders
- 13th International Congress on Autoimmunity, Athens
- IPOPI International Primary Immunodeficiencies Congress – IPIC 5th Edition – Vilamoura, Portugal
- 20th International Vasculitis and ANCA workshop – Dublin
- 14th International Congress on SLE & 6th International Congress on Controversies in Rheumatology and Autoimmunity (CORA)
- Invitation to webinar: ‘Vasculitis: from cell to service’
- WAS 2022, Munich, Germany– First Announcement
- JIR Winter School
- 4th Conference on European Reference Networks
- 18th International Conference on Behçet’s Disease
- ESID 2018
- PReS 2018
- International Conference on Immunology, Immunodeficiency and Immunotherapy
News archive
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New EULAR/PReS recommendations for the Diagnosis and Management of Still’s disease
Save the Date: Tuesday 03… Read More
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Curation and expansion of the Human Phenotype Ontology for systemic autoinflammatory diseases improves phenotype-driven disease-matching
We are happy to share… Read More
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Autoinflammatory Diseases Awareness Month
Our patient association partner Familial… Read More
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Immune dysregulation workshop by the SJD Barcelona Children’s Hospital
The University Hospital Sant Joan… Read More
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Consensus meeting: International Clinical trial with Interferon Inhibitors in JDM
Within the activities of the… Read More
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ImmunoTea: Your Immunology Podcast
Here at ERN RITA we… Read More
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Pre-congress course on Adult Haemophagocytic Lymphohistiocytosis
The Centro Hospitalar Universitário de… Read More
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Chronic poliovirus excretion in PID: a global concern for polio eradication
Save the Date: Tuesday 05… Read More
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PReS Course on Juvenile Idiopathic Inflammatory Myopathies
The first PReS Educational Course on… Read More
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Make your voice heard: Take the new Rare Barometer survey and share your opinion on newborn screening for rare diseases!
Rare Barometer, a EURORDIS initiative,… Read More
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Call to contribute to a collaborative study on IKBKB GOF
Several RITA Members and the… Read More
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Call to contribute to a collaborative study on SOCS1 haploinsufficiency
Dr. Prof Stephan Ehl is… Read More
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Pathogenesis and treatment of eosinophilic granulomatosis with polyangiitis (EGPA)
Save the Date: Tuesday 04… Read More
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International Vasculitis Day 2023
The ERN RITA celebrated the… Read More
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Early bird registration is open for IPIC2023!
The Early bird registration for… Read More
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How I Diagnose Autoimmune Encephalitis?
Save the date: June 6th… Read More
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EULAR Recommendations for the management of ANCA-Associated Vasculitis: Strong involvement of RITA Members
The European Alliance of Associations… Read More
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PReS Knowledge-based Exam
The Pediatric Rheumatology European Association… Read More
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EPNS Congress 2023, Prague
The European Peadiatric Neurology Society… Read More
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The journey of a patient with a Rare Immunological Disorder #2
ERN RITA is proud to… Read More
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Eureka International Summer Course on Translational Medicine
The Eureka Institute for Translational… Read More
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How I perform a Genetic PID diagnosis: exome or go for gene panel first?
Save the date: May 2nd 2023, 12:00 PM (CEST)
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ESGCT Career progression Award and Early Career Investigator Award
The European Society for Gene… Read More
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The journey of a patient with a Rare Immunological Disorder #1
We are happy to share the first patient journey!
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Tuesday Lunch with RITA webinars series is open for suggestions!
Since October 2022, the RITA… Read More
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Call for Applications: The ICPERMED Best Practice recognition 2023
The Chairs of the RITA… Read More
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Course on Primary Immunodeficiencies for Clinicians and Nurses
The Catalan Pediatric Society (Societat… Read More
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Symposium on Primary Immunodeficiencies 2023
Since 2010, the Immunology/Rheumatology Department… Read More
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ERN RITA General Assembly, 16-17 June in Utrecht, Netherlands
Van der Valk Hotel in Utrecht, 15-17 June 2023
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How do I diagnose interstitial lung disease in different immune-mediated disorders?
Save the date: March 7th 2023, 12:00 PM (CEST)
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20th annual Spring School of Primary Immunodeficiencies
11-13 May 2023, Kutná Hora, Czech Republic
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Tuesday lunch with RITA: How do I treat ANCA-Associated Vasculitis?
Save the date: March 7th 2023, 12:00 PM (CEST)
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Save the Date! AIDA International Seminars 2023
The AIDA Network has just launched the dates of its 2023 edition
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Save the Date! Next International Primary Immunodeficiencies Congress #IPIC2023
8-10 November 2023
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Call for proposals – PReS/CARRA Research Grant
A call for proposals to benefit from a research grant
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EJP RD – ERN Workshop: RARE TOGETHER
Next 8-9 May 2023 will… Read More
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Save the Date! 13th C1-inhibitor Deficiency & Angioedema Workshop!
The C1 Inhibitor Deficiency &… Read More
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Call for proposals – PReS/PRINTO Research Grant
For the fourth consecutive year,… Read More
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Register to the Training on Strategies to foster solutions of undiagnosed rare disease cases
The European Joint Programme on… Read More
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Save the Date – Midterm Meeting on New indications in Immunedysregulatory, Autoinflammatory and Autoimmune Diseases
EBMT’s Autoimmune, Inborn Errors and… Read More
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Save the Date – Klaus Betke Symposium 2023
The 4th International Klaus Betke… Read More
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Current Transition Practice for Primary Immunodeficiencies and Autoinflammatory Diseases in Europe: a RITA‑ERN Survey.
ERN RITA is proud to share the latest production of its Transition Working Group.
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Tuesday lunch with RITA: Rare disorders in the borderline between PID and autoimmunity
Save the date: February 7th 2023, 12:00 PM (CEST)
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Tuesday lunch with RITA: Vaccination of immunodeficient patients and their social network
Save the date: January 3rd 2023, 12:00 PM (CEST)
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Course for Patient Research Partners: register now!
Deadline for registration: 30th November 2022
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Tuesday lunch with RITA: Cytokine Storm Syndromes
Save the date: December 6th 2022, 12:00 PM (CEST)
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Tuesday Lunch with RITA: Tatoo and Immune mediated diseases
Save the date: November 8, 2022, 12:00 CEST
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Tuesday Lunch with RITA: Two years of SCID newborn screening in Germany – What have we learned?
What have we learned?
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PReS 2022: Hybrid Congress
September 20-23, 2022 – Prague, Czech Republic
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From Paradigms to Paradoxes in Immunity and Immunopathology (PPII)
PPII International Conference, Freiburg, October 6th-8th 2022
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ESID-IPOPI-INGID Biennial meeting: Dysregulation and hyperinflammation in inborn errors of immunity (IEI)
October 12-15, 2022 – Gothenburg, Sweden
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Recommendations for whole genome sequencing (WHS) in diagnostics for rare diseases
Marielle van Gijn from our… Read More
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An interview of Jordi Antón; new chair of the ERN RITA Education Working Group
Jordi Antón is paediatric rheumatologist… Read More
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RITA Newborn screening activities
The ERN Expert Platform on… Read More
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From high throughput sequencing to diagnosis in immune mediated disorders
ESID/ERN-RITA Workshop
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ERN-RITA message about the war in Ukraine
From ERN-RITA coordinator Prof Nico Wulffraat
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Producing an Arthritis Value-Framework with Economic Evidence (PAVE): Project granted!
Chronic arthritis in children and… Read More
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Promoting cooperation with patient representatives within ERN-RITA and beyond
Both healthcare professionals and patient… Read More
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A first ERN RITA Exchange Visit
Enhanced collaboration among RITA’s Affiliated Partner Centres
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13th International Congress on Autoimmunity, Athens
Save the date: 10-13 June 2022
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IPOPI International Primary Immunodeficiencies Congress – IPIC 5th Edition – Vilamoura, Portugal
Save the date: 27-29 April 2022
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20th International Vasculitis and ANCA workshop – Dublin
Save the date: 3-6 April 2022
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14th International Congress on SLE & 6th International Congress on Controversies in Rheumatology and Autoimmunity (CORA)
Save the date: 6-9 October 2021
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Workshops funding opportunity: The European Joint Programme on Rare Diseases has launched the ERN Research Training
Up to 25 000€ granted for the organisation of a workshop.
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Novel managing board for the Working Group for Pediatric Immunology (German: Arbeitsgemeinschaft Pädiatrische Immunologie -API-)
The API represents German, Swiss, and Austrian Pediatric Immunologists and focuses on basic and translational science of inborn errors of immunity.
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IPOPI Forum on EU Crossborder Healthcare Directive and Curative Therapies
IPOPI held an EU PID… Read More
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The COVID Human Genetic Effort
are conducting an international survey… Read More
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Invitation to webinar: ‘Vasculitis: from cell to service’
Save the date: 17th and 18th November 2021
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ERN-RITA develops its visual branding and adopts a new logo and brand guidelines
The new logo is based… Read More
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EU recommendations on MOG antibodies associated diseases (MOGAD) in children
Over the past few years,… Read More
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Why developing clinical guidelines for the diagnosis and management of rare diseases is so important?
An interview of Prof Siobhan Burns, Professor of Translational Immunology, Royal Free – London and Chair of ESID Clinical Working Party
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The HyperPED-COVID Registry: participation, still possible!
This joined PReS, ESID, ISSAID,… Read More
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The MeRITA project is under validation, ready to be published in 2022: contribute to it!
The MERITA meta-data registry will… Read More
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Managing rare diseases is not easy. But when it comes to very rare conditions…
There, CPMS can help in… Read More
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ERN RITA takes an active role in the launch meeting of the ERN Expert Platform for Newborn Screening
The European Commission was pleased… Read More
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WAS 2022, Munich, Germany– First Announcement
Save the date: 18th March 2022
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Shine a Light for Autoinflammatory Diseases
Since 2015, August has been… Read More
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Hematopoietic stem cell transplantation for inborn errors of immunity
Guidelines by EBMT/ESID inborn errors working party
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Do you speak immunology? A new language for congenital immune disorders
(Vienna, 30.06.2021) A detailed vocabulary… Read More
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27-29 September 2021: Symposium on Secondary Immunodeficiency by ESID
The Immunological Consequences of Targeted Immune Therapies
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ERN-RITA Webinar: Clinical guidance for vaccination of children with rheumatic diseases
Save the date: May 21, 2021, 14:00 CET
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ERN-RITA Webinar: Introduction of the HyperPED-COVID Registry
Save the date: May 6, 2021, 14:00 CET
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ERN-RITA Webinar: COVID-19 vaccination for PIDs & rare Autoimmune rheumatic diseases
Save the date: April 9, 2021, 14:00 CET
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ERN-RITA Webinar: Introduction to the Human Phenotype Ontology project
Save the date: March 26, 2021, 14:00 CET
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ERN-RITA Webinar: Primary HLH from birth to adulthood – a disease with many faces
Save the date: February 26, 2021, 14:00 CET
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Introducing the HyperPED-COVID Registry
In the last few months… Read More
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Invitation to first RECOMB webinar
Save the date: January 29, 15:00 CET
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Information Webinar for JTC 2021
The EJP RD is glad… Read More
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ERN-RITA Webinar: Advances in the treatment of giant-cell arteritis
Save the date: January 22, 2021, 14:00 CET
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ERN-RITA Webinar: New autoinflammatory diseases and new approaches for the characterization of patients with undefined SAID
Save the date: December 18, 2020, 14:00 CET
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RITA Webinar: Too much of a response: Hyperinflammation HLH and MAS and beyond
Save the date: November 13, 2020, 14:00 CET
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4th ESID CWP/IEWP Online Thymic Workshop
Save the date: 5th November… Read More
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NEWBORN SCREENING FOR SCID – “STATE OF THE ART”
Save the date: January 26th… Read More
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Invitation to RITA Webinar: Newborn screening for SCID
Implications from a year experience of a nationwide program.
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ERN RITA supports the European Society of Human Genetics Statement
We wish to express our support to the following statement.
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MERITA project introduction & leaflet
We are happy to announce the MEtadata registry of the ern RITA.
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Invitation to RITA Webinar: Evaluation and Early Diagnosis of AAV
September 11, 2020, 14:00 CEST… Read More
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Survey on the outcome of autoinflammatory diseases after the COVID-19 pandemic
You can find the survey… Read More
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Invitation to RITA Webinar: Pediatric multisystem inflammatory syndrome (PMIS) in the context of COVID-19
10. June 2020, 14:00 CET… Read More
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The second Coronavirus call for an Expression of Interest is open
The second Coronavirus call for… Read More
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European Conference on Rare Diseases & Orphan Products (ECRD) 14-15 May 2020
As you may already know,… Read More
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COVID-19 European Patient Registry
In the midst of the… Read More
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Global Survey on COVID-19 and PIDs
IPOPI is participating in the… Read More
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IPOPI coordinated a global statement on COVID-19
In light of the ongoing… Read More
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IPOPI, ESID and ISNS launch anEU level Call to Action on Newborn Screening for Rare Diseases
The EU level Call to… Read More
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IPIC2019 The 4th International Primary Immunodeficiencies Congress on 6-8 November 2019 in Madrid
The 4th edition of the… Read More
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IPOPI webinar “Immunoglobulin Therapies: From good to best practice”
https://tv.ipopi.org/
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HPO meeting towards immune mediated disorders in Vienna on 17-18th October
Happy to announce the 2019… Read More
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2019 call for membership to the existing European Reference Networks (ERNs) will open soon
2019 call for membership to… Read More
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27th Watson Study Day
Come and join us in… Read More
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New conect4children Consortium Selects Inaugural Research Portfolio to Advance Development of Innovative Paediatric Medicines
Novel Cross-sector Collaboration Establishes Pan… Read More
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NEW! Severe Combined Immunodeficiency (SCID) EQA Scheme 2020
EMQN are introducing a pilot… Read More
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Experts wanted in Human Phenotype Ontology
Human Phenotype Ontology (HPO) and… Read More
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Join the World PI Week 2019!
Join the World PI… Read More
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Press release World PI Week
Putting patients first in primary… Read More
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JIR Winter School
Auto-inflammatory Disease Switzerland, Villars 11… Read More
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4th Conference on European Reference Networks
Date Wednesday 21 November 2018 from… Read More
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18th International Conference on Behçet’s Disease
18th International Conference on Behçet’s… Read More
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ESID 2018
24-27 October 2018, Lisbon, Portugal… Read More
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PReS 2018
5-8 September 2018, Lisbon, Portugal… Read More
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European Rare Diseases Day 2018: One-year anniversary of the European Reference Networks for rare diseases
One year on from their… Read More
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International Conference on Immunology, Immunodeficiency and Immunotherapy
27-29 June 2018 – Freiburg,… Read More
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ERN RITA Network Meeting
Friday 7 September 2018 Lisbon,… Read More
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ERN RITA Council Meeting
18 April 2018, Amsterdam, the… Read More
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Creating a Sustainable Environment for Holistic & Innovative Care for Rare Diseases & Complex Conditions
12-13th April 2018, Frambu, just… Read More
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Commission representations in Member States
France: https://ec.europa.eu/france/news/20180228_maladies_rares_fr United Kingdom: https://ec.europa.eu/unitedkingdom/news/first-anniversary-eu-health-network-harnesses-… Read More
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Press release Rare Diseases Day and 1 year anniversary of ERNs
European press: The Parliament Magazine,… Read More