Patient Journeys

The patient journey is a visual, educational tool describing the experiences of patients living with a rare disease. Made by patients, the patient journey gives the opportunity for health care professionals and patients to identify gaps in care and adapt care pathways. Patient journeys are also useful resources for patients’ families, non-specialist clinicians, and the general public to understand the care needs of patients living with a rare immunological disease.

The RITA Patient Journey task force is responsible for the successful launch of the patient journeys.

Any questions on the Patient Journeys? Contact ern-rita@umcutrecht.nl

The journey of a patient with a Rare Immunological Disorder #1: Common Variable Immune Deficiency (CVID)


The journey of a patient with a Rare Immunological Disorder #2: Small Vessel Vasculitis