The patient journey is a visual, educational tool describing the experiences of patients living with a rare disease. Made by patients, the patient journey gives the opportunity for health care professionals and patients to identify gaps in care and adapt care pathways. Patient journeys are also useful resources for patients’ families, non-specialist clinicians, and the general public to understand the care needs of patients living with a rare immunological disease.
The RITA Patient Journey task force is responsible for the successful launch of the patient journeys.
Currently you can view the following interactive journeys online:
Any questions on the Patient Journeys? Please read the Patient Journey Handbook!
The journey of a patient with a Rare Immunological Disorder #1: Common Variable Immune Deficiency (CVID)
The journey of a patient with a Rare Immunological Disorder #2: Small Vessel Vasculitis
The journey of a patient with a Rare Immunological Disorder #3: Familial Mediterranean Fever
For more information, please contact ern-rita@umcutrecht.nl