Patient Organisations within the EU

PRIMARY IMMUNODEFICIENCY

National

Austria: ÖSPID (Österliche Selbsthilfe für Primäre Immundefekte)

Belgium: BOPPI (Belgium Organisation for Patients with Primary Immunodeficiencies)

Bulgaria Association of People with Congenital Immunodeficiency

Cyprus: Cyprus Primary Association and Friends

Denmark: IDF (Immun Defekt Foreningen)

Estonia: Estonian Patient Society for Primary Immunodeficiencies

Finland: Immunipuutospotilaiden yhdistys t.y.

France: IRIS (Immunodéficience Primitive : Information Recherche, Soutien)

Germany: DSAI (Deutsche Selbsthilfe Angeborene Immundefekte e. V.)

Greece: ARMONIA (Association of Greek Friends for paediatric immunology – Primary immunodeficiencies)

Hungary: Hungarian Organization for patients with Immunodeficiencies)

Ireland: IPIA (Irish Primary Immunodeficiency Organisation)

Italy: AIP (Associazione Immunodeficienze Primitive)

Poland: Immunprotect (Association for Patients with Primary Immunodeficiencies)

Portugal: APDIP (Associação Portuguesa de Doentes con Immunodeficiencia Primaria

Romania: ARPID (Romanian Association for Patients with Primary Immunodeficiencies)

Slovakia: Slovakian Association for Patients with Primary Immunodeficiency

Slovenia: Slovenian Society for Immune disorders

Spain: AEDIP (Asociación española de deficits immunitarios primarios)

Sweden: PIO (Primaer Immunbrist Organisationen

The Netherlands: Stichting voor Afweerstoornissen

United Kingdom: PID UK (Primary Immunodeficiency UK)

International

IPOPI: International Patient Organisation for Primary Immunodeficiencies

AUTOINFLAMMATORY

International

European Network for Children with Arthritis (ENCA)

Pediatric Rheumatology listed by country :

National

France: Association de malades du Behcet

France: Association française contre l’amylose

Germany : LMB (Leben mit Behcet)

Italy : associazione italiana Sindrome e Malatta di Behcet

United Kingdom : Behçet’s Syndrome Society

AUTOIMMUNITY

International

Vasculitis Europe

National

Belgium : CIB-Liga vzw

Finland : Suomen Vaskuliittiyhdistys r.y.

France: Association France Vascularites

France : AMPAPTI (Association de Malades Atteints de Purpura Thrombopénique Immunologique)

France : O-CYTO.org (Recherche pour les maladies auto-immunes du sang)

Finland : Suomen Vaskuliittiyhdistys ry

Greece: ELEANA Hellenic League Against Rheumatism

Ireland: VIA Vasculitis Ireland Awareness

The Netherlands: Vasculitis Stichting

UK: Vasculitis UK

Download our brochure

Download our brochure

Contact us

We welcome you to contact us for more information. If you have any further questions or queries please do not hesitate to get in touch.

Contact