We are pleased to announce that three new patient organisations have recently joined RIPAG (RITA Patient Advocacy Group). This expansion further strengthens our collective efforts in supporting patients with rare immunological and autoinflammatory diseases.
Autoinflammatory Disorders Stream
AIPO z.s. (Czech Republic)
- Representative: Kateřina Azim Aburas
- Website: Not yet available
Autoimmune Diseases Stream
Suomen Vaskuliittiyhdistys ry (Finland)
- Representative: Neea Strangeway (Finnish Vasculitis Association)
- Website: www.vaskuliittiyhdistys.fi
Primary Immunodeficiencies Stream
Vereniging voor Angio-Oedeem (Netherlands)
- Representative: Maria Beekman-Kortekaas (Association for Angioedema)
- Website: www.angiooedeemvereniging.nl
We are excited to welcome these organisations to RIPAG and look forward to collaborating with them to maintain ERN RITA’s patient-centric focus and leverage their expertise as essential contributors to the RITA network.
For more information about RIPAG, please visit this webpage.
