IT/e-Health working GROUP

There are two main areas ITWG is involved in:

1) To develop and support RITA clinical activities

  • Clinical Patient Management System
  • European registry (in collaboration with the Registry WG)

2) To assist other RITA Working Groups and Coordinating Centre with IT/communication issues

  • RITA website
  • Technical aspects of other activities (e.g. educational webinars in collaboration with the Education WG)
  • Promotion and marketing of RITA activities in member countries (in collaboration with Communication WG and patient representatives)
  • Building user-friendly internal IT structure compatible with other international networks

CPMS-related activities of ITWG/RITA Helpdesk:

– Training for CPMS newcomers (HCP, Affiliated Partners, Coordination hubs)

  • F2F training sessions during international congresses
  • Site visits
  • Online training sessions via real-time teleconferences

– Improving and maintaining the CPMS functionalities

  • identification of problems and building guidelines for the RITA CPMS consultation process
  • Improving and maintaining the quality of CPMS case description inputs (disease templates)

– Helping with specific problems from the CPMS registration of individuals to any technical issues
– Assistance to panel leads and panel members with individual steps in the CPMS consultation process
– Monitoring patient access pathways to CPMS consultations and building feedback forms
– CPMS performance monitoring and reporting problematic areas

ITWG structure:

– Chair
– RITA Helpdesk (Administrative, technical and IT-training core of the ITWG)
– Disease Stream representatives

Additional activities

CPMS – Guides, information & useful materials

Step-by-step registration It takes only... Read More

Read more
Managing rare diseases is not easy. But when it comes to very rare conditions…

There, CPMS can help in... Read More

Read more
Educational webinars organized by ERN-RITA

Recently added recording: Tattoos and... Read More

Read more