Registries / Biobanks working GROUP

Objectives

  • To provide a census of already running registries in Europe, potentially from local initiatives to international realities. To give us a precise picture of the number of registries, number of patients, conditions examined, type of information collected, to encourage rationalization and efficiency of already existing and future registries.

Team

Chair

Nicola Ruperto

Istituto Giannina Gaslini, Genova