- Contribute by providing the patients’ perspective
- Promote and encourage a patient-centric approach
- Advocate for patients’ rights
- Ensure that ethical processes are in place when addressing patient and clinical needs
- Advise on overall planning, assessment and evaluation of activities and initiatives within RITA
- Monitor the performance of patient involvement in RITA
- Evaluate the adoption of patient feedback by RITA
- Contribute to the development and dissemination of patient information, policy, good practice, care pathways and guidelines
- Contribute to research e.g., defining research areas important to patients and their families
- Provide the patients’ perspective on their needs and ensure they are considered and included in RITA discussions and activities.
European Reference Network for Immunodeficiency, Autoinflammatory, Autimmune and Pediatric Rheumatic disea