News

Invitation to RITA Webinar: Newborn screening for SCID
October 1, 2020

Implications from a year experience of a nationwide program.

ERN RITA supports the European Society of Human Genetics Statement
September 29, 2020

We wish to express our support to the following statement.

MERITA project introduction & leaflet
September 10, 2020

We are happy to announce the MEtadata registry of the ern RITA.

Invitation to RITA Webinar: Evaluation and Early Diagnosis of AAV
August 31, 2020

September 11, 2020, 14:00 CEST…

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Survey on the outcome of autoinflammatory diseases after the COVID-19 pandemic
August 1, 2020

You can find the survey…

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Invitation to RITA Webinar: Pediatric multisystem inflammatory syndrome (PMIS) in the context of COVID-19
June 22, 2020

10. June 2020, 14:00 CET…

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The second Coronavirus call for an Expression of Interest is open
May 20, 2020

The second Coronavirus call for…

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European Conference on Rare Diseases & Orphan Products (ECRD) 14-15 May 2020
April 20, 2020

As you may already know,…

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COVID-19 European Patient Registry
April 15, 2020

In the midst of the…

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Global Survey on COVID-19 and PIDs
March 17, 2020

IPOPI is participating in the…

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IPOPI coordinated a global statement on COVID-19
March 16, 2020

In light of the ongoing…

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IPOPI, ESID and ISNS launch anEU level Call to Action on Newborn Screening for Rare Diseases
March 16, 2020

The EU level Call to…

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IPIC2019 The 4th International Primary Immunodeficiencies Congress on 6-8 November 2019 in Madrid
October 10, 2019

The 4th edition of the…

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IPOPI webinar “Immunoglobulin Therapies: From good to best practice”
October 9, 2019

https://tv.ipopi.org/

HPO meeting towards immune mediated disorders in Vienna on 17-18th October
August 27, 2019

Happy to announce the 2019…

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2019 call for membership to the existing European Reference Networks (ERNs) will open soon
July 29, 2019

2019 call for membership to…

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27th Watson Study Day
July 18, 2019

Come and join us in…

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New conect4children Consortium Selects Inaugural Research Portfolio to Advance Development of Innovative Paediatric Medicines
May 6, 2019

Novel Cross-sector Collaboration Establishes Pan…

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NEW! Severe Combined Immunodeficiency (SCID) EQA Scheme 2020
April 25, 2019

EMQN are introducing a pilot…

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Experts wanted in Human Phenotype Ontology
April 24, 2019

Human Phenotype Ontology (HPO) and…

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Join the World PI Week 2019!
April 23, 2019

  Join the World PI…

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Press release World PI Week
April 23, 2019

Putting patients first in primary…

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European Rare Diseases Day 2018: One-year anniversary of the European Reference Networks for rare diseases
April 17, 2018

One year on from their…

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Commission representations in Member States
April 12, 2018

France: https://ec.europa.eu/france/news/20180228_maladies_rares_fr United Kingdom: https://ec.europa.eu/unitedkingdom/news/first-anniversary-eu-health-network-harnesses-…

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Press release Rare Diseases Day and 1 year anniversary of ERNs
April 12, 2018

European press: The Parliament Magazine,…

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