News

ERN-RITA Webinar: Introduction of the HyperPED-COVID Registry

Save the date: May 6, 2021, 14:00 CET

ERN-RITA Webinar: COVID-19 vaccination for PIDs & rare Autoimmune rheumatic diseases

Save the date: April 9, 2021, 14:00 CET

ERN-RITA Webinar: Introduction to the Human Phenotype Ontology project

Save the date: March 26, 2021, 14:00 CET

ERN-RITA Webinar: Primary HLH from birth to adulthood – a disease with many faces

Save the date: February 26, 2021, 14:00 CET

Introducing the HyperPED-COVID Registry

In the last few months…

Invitation to first RECOMB webinar

Save the date: January 29, 15:00 CET

Information Webinar for JTC 2021

The EJP RD is glad…

ERN-RITA Webinar: Advances in the treatment of giant-cell arteritis

Save the date: January 22, 2021, 14:00 CET

ERN-RITA Webinar: New autoinflammatory diseases and new approaches for the characterization of patients with undefined SAID

Save the date: December 18, 2020, 14:00 CET

RITA Webinar: Too much of a response: Hyperinflammation HLH and MAS and beyond

Save the date: November 13, 2020, 14:00 CET

4th ESID CWP/IEWP Online Thymic Workshop

Save the date: 5th November…

NEWBORN SCREENING FOR SCID – “STATE OF THE ART”

Save the date: January 26th…

Invitation to RITA Webinar: Newborn screening for SCID

Implications from a year experience of a nationwide program.

ERN RITA supports the European Society of Human Genetics Statement

We wish to express our support to the following statement.

MERITA project introduction & leaflet

We are happy to announce the MEtadata registry of the ern RITA.

Invitation to RITA Webinar: Evaluation and Early Diagnosis of AAV

September 11, 2020, 14:00 CEST…

Survey on the outcome of autoinflammatory diseases after the COVID-19 pandemic

You can find the survey…

Invitation to RITA Webinar: Pediatric multisystem inflammatory syndrome (PMIS) in the context of COVID-19

10. June 2020, 14:00 CET…

The second Coronavirus call for an Expression of Interest is open

The second Coronavirus call for…

European Conference on Rare Diseases & Orphan Products (ECRD) 14-15 May 2020

As you may already know,…

COVID-19 European Patient Registry

In the midst of the…

Global Survey on COVID-19 and PIDs

IPOPI is participating in the…

IPOPI coordinated a global statement on COVID-19

In light of the ongoing…

IPOPI, ESID and ISNS launch anEU level Call to Action on Newborn Screening for Rare Diseases

The EU level Call to…

IPIC2019 The 4th International Primary Immunodeficiencies Congress on 6-8 November 2019 in Madrid

The 4th edition of the…

IPOPI webinar “Immunoglobulin Therapies: From good to best practice”

https://tv.ipopi.org/

HPO meeting towards immune mediated disorders in Vienna on 17-18th October

Happy to announce the 2019…

2019 call for membership to the existing European Reference Networks (ERNs) will open soon

2019 call for membership to…

27th Watson Study Day

Come and join us in…

New conect4children Consortium Selects Inaugural Research Portfolio to Advance Development of Innovative Paediatric Medicines

Novel Cross-sector Collaboration Establishes Pan…

NEW! Severe Combined Immunodeficiency (SCID) EQA Scheme 2020

EMQN are introducing a pilot…

Experts wanted in Human Phenotype Ontology

Human Phenotype Ontology (HPO) and…

Join the World PI Week 2019!

  Join the World PI…

Press release World PI Week

Putting patients first in primary…

European Rare Diseases Day 2018: One-year anniversary of the European Reference Networks for rare diseases

One year on from their…

Commission representations in Member States

France: https://ec.europa.eu/france/news/20180228_maladies_rares_fr United Kingdom: https://ec.europa.eu/unitedkingdom/news/first-anniversary-eu-health-network-harnesses-…

Press release Rare Diseases Day and 1 year anniversary of ERNs

European press: The Parliament Magazine,…

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