We invite all our HCP members who have a Pediatric Rheumatology stream to take the time to answer this survey on transition of care. The main outcome is to identify unmet needs and gaps related to the transition of care for the rCTDs community.
The initiative is led by Prof. Gabriele Simonini (AOU Meyer IRCCS, Firenze, Italy) and RITA Member Prof. Tadej Avčin (Ljubljana University Medical Centre, Slovenia). The core team includes expert clinicians in pediatric and adult care, patient representatives, and members of the ReCONNET Coordination Team.
Relevant HCP are invited to fill out this survey before February 28th 2024.