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Creating a Sustainable Environment for Holistic & Innovative Care for Rare Diseases & Complex Conditions

12-13th April 2018, Frambu, just... Read More

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Commission representations in Member States

France: https://ec.europa.eu/france/news/20180228_maladies_rares_fr United Kingdom: https://ec.europa.eu/unitedkingdom/news/first-anniversary-eu-health-network-harnesses-... Read More

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Press release Rare Diseases Day and 1 year anniversary of ERNs

European press: The Parliament Magazine,... Read More

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