Patient Organisations working GROUP

• Contribute to the development of patient information, treatment policies, good practice guidelines and care pathways
• Support the network with the dissemination of information and communication to the wider patient community
• Contribute to the development of research priorities and ensure they are informed by the needs of patients and families
• Advise on ethical issues on the application of personal data rules, compliance of information consent and management of complaints
• Engage with the appropriate patient communities for disease specific activities and projects
• Anything else needed to achieve RIPAGs goals and objectives.

Participation in other RITA WGs: