Patient Organisations working GROUP
Objectives
- Contribute to the development of patient information, treatment policies, good practice guidelines and care pathways
- Support the network with the dissemination of information and communication to the wider patient community
- Contribute to the development of research priorities and ensure they are informed by the needs of patients and families
- Advise on ethical issues on the application of personal data rules, compliance of information consent and management of complaints
- Engage with the appropriate patient communities for disease specific activities and projects
- Anything else needed to achieve RIPAGs goals and objectives.
Participation in other RITA WGs:
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