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Why developing clinical guidelines for the diagnosis and management of rare diseases is so important?

An interview of Prof Siobhan Burns, Professor of Translational Immunology, Royal Free - London and Chair of ESID Clinical Working Party

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The HyperPED-COVID Registry: participation, still possible!

This joined PReS, ESID, ISSAID,... Read More

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The MeRITA project is under validation, ready to be published in 2022: contribute to it!

The MERITA meta-data registry will... Read More

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Managing rare diseases is not easy. But when it comes to very rare conditions…

There, CPMS can help in... Read More

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ERN RITA takes an active role in the launch meeting of the ERN Expert Platform for Newborn Screening

The European Commission was pleased... Read More

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WAS 2022, Munich, Germany– First Announcement

Save the date: 18th March 2022

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